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New Partners in Research videos promoting collaborative benefits of involving lived experience
The NHS Research Scotland Neuroprogressive and Dementia Network (NRS NDN) has underlined its commitment to involving people with lived experience by supporting the co-production of a trio of informative animated videos
To mark September’s Alzheimer’s Awareness Month, the Network pledged to raise awareness of the disease and other types of dementia — considered a key driver for people getting involved in research and patient and public involvement (PPI) — by undertaking a fresh online initiative.
Two years ago, NRS NDN helped to oversee the publishing of a free to download book, ‘Challenging Assumptions Around Dementia’, co-authored by people with lived experience, which has been downloaded 23,000 times.
The Network has since taken that digital success further with three co-created animated clips which are now available to view on NRS NDN’s YouTube channel, helping to extend understanding and learning informed by the experiences of members of its Partners in Research group.
The ‘Partners in Research Animations’ were developed following a series of workshops with external collaborators which led to the creation of scripts and visual content with a twin focus around the subjects of co-produced research and the group itself.
Facilitated by a Royal Society of Edinburgh grant award, the three inspiring clips are:
- ‘Everyone’s an expert’ highlights to researchers and healthcare professionals how involving people with lived experience can improve the work being done
- ‘Guide to co-production’ focuses on five key principles that the group felt were important for researchers and people with lived experience to know if they wanted to get involved in co-production
- ‘Benefits of being involved in Partners in Research’ focuses on why other people with lived experience may like to get involved in the group
Dr Rosie Ashworth, NRS NDN’s PPI/Partners in Research Lead said: “These three short animations are another way of showing people some of the work we do, and we hope that they help start more conversations about meaningful involvement of people with lived experience.
“We also hope to produce similar work in the future with our RICH Voices group, the ‘patient and public involvement’ group within Enabling Research in Care Homes (ENRICH), to showcase care home research and how people can get more involved.”
She added: “We have several projects on the go with Partners in Research and RICH Voices, and we are always keen to develop new activities and find ways to involve people with lived experience.”
This month will see the launch of a Parkinson’s Guide to Clinical Trial Research — a resource co-created by people with Parkinson’s, with more information set to be available soon.
RICH Voices will also be meeting on Monday 13 October to work with care homes and family members and explore the different expectations people have of their roles in supporting residents in care homes and co-developing appropriate support.
If you are interested in hearing more about Partners in Research or RICH Voices, please get in touch via email.
Publication date: 6th October 2025
